Experts please help!

[Northern_Shutterbug]

I know I've put this on my post below but I'm desperate for any help I can get!

Well, I've discharged myself for tonight. My stats were staying steady, and the nurses were happy with the fact I wasn't in pain, it was just the dr that wasn't happy with me leaving. It was causing me more stress staying there waiting for tomorrow afternoon just so they could monitor my blood pressure and pulse every 5 hours and wait for 1pm tomorrow where they'll repeat the blood test.

So, I'm on strict orders to go back IMMEDIATELY if I present certain symptoms, but its difficult because I'm running a fever from a cold virus, so feel bad anyway.

So tomorrow I have a million and one questions but here are my main ones.

1, the pain in my side was worse on the 2nd and then eased in the evening, becoming a full pressure ache that radiated round the right side of my pelvis to my lower back and down my right leg, this has eased considerably since with only 4 small episodes today. Surely if it was ectopic the pain would be getting worse?

2, I have had a very small amount of fresh blood on wiping, didn't even stain knickers, on the 3rd, nothing else, would this not get worse?

3, the sonographer said she had seen a large amount of fluid NEXT to my right ovary, as well as a cyst on the ovary. She did not see or mention anything in the tube, so surely if the fluid was blood from the tube I would be in agony as it means its ruptured.

4, there was a sac in the uterus measuring 5 weeks, which I know I am dead on, so could this just be too early to see a yolk? Could it take a few more days to develop? How easy would it be to miss? Could the sonographer have just misses it? The drs are basically saying because there's no yolk its either an ectopic or a miscarriage.

5, my HCG level was 7000miu which the dr said means that there SHOULD be a yolk sac as after 7200miu there is ALWAYS a yolk sac. Is there any movement in this? Could the 200miu make a difference?

6, they are doing a repeat blood test tomorrow to see what it's doing. If it doubles (I hope it does!) then what will this actually tell us as I've read that it can do this with ectopics anyway. He doesn't think a scan will be done as no-one is available at weekends (!!), so surely just bloods isn't going to give us a clear picture.

If any of you could answer some if these I'd be grateful. My dr is just the registrar, the consultant never seems to be available, and he doesn't seem to be the most positive or forthwith with information.

Anyway, like I said, I'm home, resting. I had 18 hours nil by mouth, hooked up to a saline drip and just constantly being to from 7am that the registrar would see me to decide if I needed a larascocopy, and he didn't show up til 3pm. So I thought they couldn't be that worried or it be presenting as urgent.

[nuthinbutpink]

I think that before you reach 5 1/2, 6 weeks, it's impossible to tell what is going on. The cyst can explain away the pain.

You either have a normal pregnancy and in a week or so, that will be confirmed by u/s, a blighted ovum which will be confirmed if your HCG levels start to drop and you may start to bleed or an ectopic but your beta is pretty high for it to be an ectopic and if it was one, there is an embryo somewhere that they should be able to see NOW on u/s.

This is a great site for info-
Ectopic Pregnancy | Tubal Pregnancy (http://www.advancedfertility.com/ectopic.htm)

[Wanting-a-girl]

I think it's too early to see a yolk sad I thnk there is still hope

[Charlee]

I had an ectopic when I was in my late teens... I was living in China at the time with my parents, this was in the 90's so medical care for foreigners was sort of hit and miss. This is what I can share with you about my situation (and why there might be hope for you)... I took a hpt and it came up positive, but 2 days later I started bleeding A LOT. I mean, more than af bleeding, scary amount of bleeding. We went to the hospital, they saw the ectopic on u/s as clear as day... HUGE and in my right tube (it was later estimated to be 6 wks along). I went in for surgery that afternoon... So, my point is that with a good amount of ectopics, you will have SIGNIFICANT bleeding, and especially hcg levels much lower than 7000 miu...

As far as it being a viable pregnancy, if your hcg is doubling in 72 hrs then it's a good sign... odds are in your favor! Good luck and keep us posted :)

[jennaesue]

I think it's too early to see a yolk sad I thnk there is still hope

I agree. I had a scan where I was measuring exactly 5 weeks and the sac could be seen but not the yolk sac. I went back for another scan at 7 weeks and the yolk sac was there, and we saw a heartbeat.

[Northern_Shutterbug]

I really hope there's something positive tomorrow.

I'm just a bit confused as dr said that hcg levels should double in 48 hrs, which is when the next blood will be taken, but I've read online that when the level is above 6000miu then it take 4 or more days to double.

[nuthinbutpink]

I really hope there's something positive tomorrow.

I'm just a bit confused as dr said that hcg levels should double in 48 hrs, which is when the next blood will be taken, but I've read online that when the level is above 600miu then it take 4 or more days to double.
You are correct. It doesn't just keep doubling that quickly.

[Northern_Shutterbug]

I just get the feeling that the dr is talking out his arse! I know I'm being angry and he's gone through years of training but he said he'd want to see if its gone down or doubled, but at this level it's not going to double so he'll probably say it definitely means an ectopic!

His ultimate view before we left was "it's either going to turn out to be an ectopic, or you are miscarrying". Basically no hope, but I will fight for a scan tomorrow and put my foot down. They haven't (supposedly) had any complaints this month, so I'll definitely be threatening one if I don't get any answers. It's making me more stressed and in fact there isn't anything wrong, then that's not good.

[Wanting-a-girl]

I think he's talking out of his ass! I would get a different opinion

[jennaesue]

Is this your regular OB or just the hospital dr.? I would definitely be wanting to see someone else if he got something as basic as hcg doubling times wrong!

[WantingPink]

I left a comment on your other thread however, your doctor is an idiot and the best thing you can do for yourself is to listen to your gut about what is going on and to not to anything drastic until everything can be explained. What was the fluid around your ovary and why wasn't your Dr. more concerned about that? That to me sounds like the answer to your pain and bleeding.

Did you see a specialist, an OB, or was this just an emergency room Dr??

[Southern Butterfly]

I agree with everyone else, this doctor sounds not only like a complete numskull but a jerk too! I'm so sorry you're going through this. Hope you get some good news (and a doctor with a clue) tomorrow!

[Bimby]

With DS2 I had a scan at 5 weeks - my levels were quite high too but all they saw was a gestational sac - I thought I maybe saw a yolk sac but they obviously didnt as they were all doom and gloom. Fast forward a week and a half and there was a yolk sac and a fetal pole with heartbeat and 9 months later a beautiful healthy baby! I hope that is what happens with you hun. To me it sounds like your pain is stemming from the fluid on your ovary and not ectopic.. I hope all turns out the best

[Northern_Shutterbug]

He's just the hospital one. We only have general doctors here, so if you need a specialist you need to be referred. We've got private medical insurance but they don't do anything if its pregnancy related :mad: so that means going through the hospital :tissue:

Anyway, you can see that I've survived the night! I've had a raging fever but that's down to a nasty virus that's had the whole family.

Back to the hospital in 3 hours where I will stomp and kick until I've either got a scan with an answer or an appointment for tomorrow with the consultant.

[babygirl]

i had a scan at 5 weeks with my last pregnancy and just saw the egg, no sac or anything. I had passed 2 large clots and thought i had lost the pregnancy. went back a week later at 6 weeks and could see a sack and a flicker of a heart beat so a lot can change in a few days/week
hope all is well and i second the second opinion

[Northern_Shutterbug]

Went to hospital and junior dr who saw me originally took the blood and said that until they had the results later (2+ hours) then the senior would refuse to talk to him or me about it because they didn't have the full picture. He said that we could wait but last time it took over 3 hours to get the results. So, he asked what I wanted, and I've said that the hcg will give us an idea if its a miscarriage, but at 48hrs at this level of hcg, it will not double, it'll take 4+ days to do that.
If its gone up I want a scan to see if the sac in the uterus is growing. If its gone down, then obviously things are going wrong, so we can discuss the options.

I've said I want a scan, preferably tomorrow because I'm getting really stressed, which isn't good for me or the baby if there's one there.

He's said he'll call when he's got the results and told the senior what I want.

I'm chasing them in half an hour and every 45 minutes after that!

[Northern_Shutterbug]

Ok, have chased them and the results are in at least!

Friday 1pm - 7000miu/ml
Sunday 1pm - 12,300miu/ml

The nurse originally said "the hormone has increased significantly but it hasn't doubled." She said it like it was bad news, so I asked her if she actually had the numbers, which she seemed surprised that I'd actually know anything about them.

I told her that it was a good rise and it would take over 4 days to double. But she didn't seem convinced, so that's made me worried now.

The dr was coming back in a bit from another patient and they're going to phone to discuss it.

Happy but still worried.

[WantingPink]

Ok, have chased them and the results are in at least!

Friday 1pm - 7000miu/ml
Sunday 1pm - 12,300miu/ml

The nurse originally said "the hormone has increased significantly but it hasn't doubled." She said it like it was bad news, so I asked her if she actually had the numbers, which she seemed surprised that I'd actually know anything about them.

I told her that it was a good rise and it would take over 4 days to double. But she didn't seem convinced, so that's made me worried now.

The dr was coming back in a bit from another patient and they're going to phone to discuss it.

Happy but still worried.


Good for you for calling her out on her ignorance!! 12300 is a great rise which suggests there is a baby thriving somewhere. Hopefully you can get a scan with a specialist who can actually see what is going on in your uterus. The thing I would worry about is an ectopic in the upper part of your tube where the fluid was seen (that is very unlikely).

Knowledge is key!! Let them know you aren't an idiot and they won't push you around. Being your own patient advocate will get you the answers you want. It is sad but true. Right now you don't fit into any one box so no one knows what to do with your results. Be persistent and keep demanding to see the specialist. Get to the bottom of the fluid around your ovary. Get another scan to see if the fluid is increasing, decreasing, or staying the same.

Just FYI, most Drs and nurses give you the "dooms day" approach so when everything turns out to be okay then they are the hero and you are happy with what they did. If they act like everything is okay and then you end up with a miscarriage you are going to be unhappy with them and think they did something wrong. Patient satisfaction scores go down and patients are more likely to sue.

Good luck and hang in there!!

[Northern_Shutterbug]

Thank you WantingPink!

I hope there's a little one in there staying stuck!

[Northern_Shutterbug]

Drs called and got another scan tomorrow at 11:45gmt.

[Dreamofpink]

Good luck, will be thinking of you. Your number's look promising! Make sure you rest plenty tonight :hugs:

[Southern Butterfly]

Those numbers look good! Hoping you get more good news at your scan!

[Pumpkin2011]

That are good news and the numbers look great. I hope they will be able to see more tomorrow. Good luck for your scan :fx:.

[Northern_Shutterbug]

Do you think three days will make a difference? Do you think they may see a yolk sac this time?

[Wanting-a-girl]

yes i think it will... i meant to send the link over here there was something i was reading today that said the yolk sac usually isnt visable till like 5.3

i think there is a very good chance you got a stcky bean there!!

[cravingsalt]

Everything crossed for you Northern. Thinking of you and sending sticky vibes!!

[Girlsway]

Good luck Shutterbug, the worse is not knowing. I hope today was a better day and i have my fx for you.

[Bimby]

It sounds super promising so far! The numbers are good hun, looking forward to your update tomorrow.

[Northern_Shutterbug]

I'm sure you're all bored stiff of me but here goes!

Good and bad :S Gestantional sac now has a yolk and looks like it should do at this stage! So, they are happy that it is a progressing pregnancy at this stage - yey!

Bad news is that there is still a lot of fluid and a mass where they think the tube is (apparently they can't see Fallopian tubes on scans as they're too flimsy!). They THINK that the fluid could be from a cyst that's ruptured and the mass could be a corpus luteum (haven't looked that up yet!) but they can't say with certainty and it could be a (very rare) ectopic and uterine pregnancy, so twins with one in the tube, but they are pretty certain it isn't. I guess they're covering their backs incase it is.

So, I go back in a week to make sure Bean has progressed and to see what's happening with the fluid and the mass.

[atomic sagebrush]

OMG :pray: that all is well and that baby stays snuggled in there.

[OneLastDream]

Am so glad your little bean is ok. They told me also about the twin situation - one in the tube but it is very very rare and hopefully this is not happening to you but they do have to cover themselves and its good they are being thorough. A so happy for you and hope the mass turns out to be nothing x

[rainbowflower]

good luck!

[Dreamofpink]

Glad to hear that your little bean is developing and they've seen a yolk now. Keeping :fx: that everything turns out well for you!

[WantingPink]

This is such good news!! Sounds like you had a cyst that ruptured (which you said is common for you in PG) and that little bean is doing just fine. So sorry you went thought all that with the other doctor. The blood you had would also explain a ruptured mass. They must not think that you have an ectopic PG because they would want to monitor you more closely. This is such good news and good for you for getting to the bottom of it!! Thanks so much for keeping us updated!!

[nuthinbutpink]

I think your HCG would have increased a lot higher with a twin pregnancy. With your history, sounds like a cyst is the logical conclusion.

I'm glad it's progressing normally for you.

[Northern_Shutterbug]

Thank you to ALL of you for offering support and advice, you are invaluable, especially when I was in my darkest moments.

[Rosie85]

I agree it sounds more like a cyst with everything you have mentioned. Praying your bean stays and everything works out! I just knew it was going to be good news today!!

[Bimby]

So very glad you got good news about bub, hopefully the fluid sorts itself out before the next scan so u can go on and have an uneventful pregnancy x

[Northern_Shutterbug]

Thank you. I've had no unusual pain or pressure feelings since, so hopefully its resolved itself.