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Blessedbymybabies
December 16th, 2018, 12:31 AM
Hi Atomic. So all my concerns from the beginning of my pregnancy are put to rest now. I unfortunately and feel tragically miscarried today, confirmed at the hospital at 6 weeks 6 days. I went in for bleeding red for the first time and my levels are in the 100s and no pregnancy in my uterus. I just wanted to update you. I don’t believe for a second after everything I have been through with 3 pregnancies in a row that they are each a one-off anymore. Every single time each doctor said it was a one time, one off thing. I wish the doctors here knew or cared enough to try to help me find out if there is a root to my issues here. I feel each loss was so incredibly different and for completely different reasons but in my heart I feel they are connected to something and something is wrong. The words one off completely contradicts complications happening three times. I want tests or help but I have no idea what to ask them for... I am so heartbroken. I wish
I could get over this.

djmommy
December 16th, 2018, 09:58 AM
I am sooo very sorry for the losses you have experienced
They are devastating.
I'm not sure where you are but could you get into an appt with an RE? They would be best at determining underlying issues.
Huge hugs

Nell_
December 16th, 2018, 05:52 PM
Am so sorry to hear this, just heart breaking I'm sure atomic will have advice on what to do and there must be tests you can have xx

goldielock615
December 16th, 2018, 10:30 PM
I'm so sorry for your losses. It must be a very difficult time for you and your family and I hope you find your answers soon. Below is my experiences with recurrent loss and further testing, I am obviously not a doctor and just giving examples of things they could look at for you (probably different things based on your medical history).

My OB didn't take my third miscarriage seriously either and didn't think I needed to see a RE. I called an RE anyways and she was wonderful and ran tons of testing and was very helpful and supportive. It was definitely worth the time to see her and better understand what was happening. FWIW she said 3 miscarriages, even not in a row, was statistically unlikely and there is frequently an underlying cause. In my case they think my high ANA and autoimmune issues were the problem and I used Lovenox shots from O+3-period until I conceived, then my entire pregnancy.

I am not a fan of babycenter, but if I remember correctly there is a recurrent loss group that is helpful for what types of tests might fit your situation.


Here are the tests I had done just for reference of things they can look into:
HSG to check for blockages in my tubes
Ultrasound of my uterus to look for any structural issues
Ultrasounds and bloodwork to better understand if/when I was ovulating - I was ovulating early in my cycle and they were planning to start fermara to help my eggs mature more

Bloodwork:
ANA titer
AMH
THYROID PEROXIDASE AB
THYROGLOBULIN ANTIBODY
RHEUMATOID FACTOR
LUPUS ANTICOAGULANT
TSH
ANTI-CARDIOLIPIN IGG
ANTI-CARDIOLIPIN IGM
ANTI-CARDIOLIPIN IGA

Blessedbymybabies
December 16th, 2018, 10:39 PM
I am sooo very sorry for the losses you have experienced
They are devastating.
I'm not sure where you are but could you get into an appt with an RE? They would be best at determining underlying issues.
Huge hugs

Thank you djmommy :( hugs

Blessedbymybabies
December 16th, 2018, 10:40 PM
Am so sorry to hear this, just heart breaking I'm sure atomic will have advice on what to do and there must be tests you can have xx

Thank you for your kindness Neil, I know you followed my other posts...I appreciate your support

Blessedbymybabies
December 16th, 2018, 10:45 PM
Goldie Thank you as well, so much. I am going to look into what each of those tests mean and see what I can do. Im so sorry for your losses as well, but I am happy for you that you were able to put your foot down and in doing so got the answers you need. I hope I can do that too, I just feel something is wrong. Its so unbelievable because my son and daughter were born close in age and are the healthiest, brightest children they are my life. I never ever imagined it would be me. Since my son passed in utero at 6 months with some of the rarest heart defects you could imagine, I feel my pregnancies ran downhill since, I wish every day I didnt wait 4 years since I had my son to try to have my third (son is almost 5 and daughter almost 7). I know I am not old at 29 but maybe it would have worked out better if I had all 3 younger. Now I have all 3 losses back to back, and now I have had a miscarriage at every stage. 6 weeks, 16 weeks and 6 months. It feels unreal, I dont even know what to think or why. Its like something switched in our genetic makeup over night since the loss of my son...I just want so so so badly to have my last baby...I dont want to stop trying and I dont want to keep losing.

atomic sagebrush
December 18th, 2018, 12:45 PM
Oh no I'm so sorry to read this and so terribly sorry I didn't spot it sooner.

Can you tell me everything that they've tested for, if anything?

atomic sagebrush
December 18th, 2018, 12:46 PM
Thank you so much Goldielock that is very helpful. Much appreciated.

atomic sagebrush
December 18th, 2018, 12:54 PM
I will say this, though - and please take this for what it's worth - I generally find that the reasons for losing babies at 6 weeks vs 16 weeks are very very different from each other and are typically not related. 6 week losses are believed to be primarily chromosomal, 16 week losses are often thyroid related, and then of course 6 month losses are quite rare. I know it's hard to wrap our heads around it but sometimes three losses really can be from 3 different causes. We have had people who suffered 3-6 miscarriages and then went on to have several healthy babies after that (without medical intervention). I do think you absolutely should get tested to rule anything fixable out, but try not to jump to the worst possible case scenario here. At 29 the odds are sky high that you will be successfully pregnant again. :heart:

atomic sagebrush
December 18th, 2018, 12:57 PM
I'm so sorry for your losses. It must be a very difficult time for you and your family and I hope you find your answers soon. Below is my experiences with recurrent loss and further testing, I am obviously not a doctor and just giving examples of things they could look at for you (probably different things based on your medical history).

My OB didn't take my third miscarriage seriously either and didn't think I needed to see a RE. I called an RE anyways and she was wonderful and ran tons of testing and was very helpful and supportive. It was definitely worth the time to see her and better understand what was happening. FWIW she said 3 miscarriages, even not in a row, was statistically unlikely and there is frequently an underlying cause. In my case they think my high ANA and autoimmune issues were the problem and I used Lovenox shots from O+3-period until I conceived, then my entire pregnancy.

I am not a fan of babycenter, but if I remember correctly there is a recurrent loss group that is helpful for what types of tests might fit your situation.


Here are the tests I had done just for reference of things they can look into:
HSG to check for blockages in my tubes
Ultrasound of my uterus to look for any structural issues
Ultrasounds and bloodwork to better understand if/when I was ovulating - I was ovulating early in my cycle and they were planning to start fermara to help my eggs mature more

Bloodwork:
ANA titer
AMH
THYROID PEROXIDASE AB
THYROGLOBULIN ANTIBODY
RHEUMATOID FACTOR
LUPUS ANTICOAGULANT
TSH
ANTI-CARDIOLIPIN IGG
ANTI-CARDIOLIPIN IGM
ANTI-CARDIOLIPIN IGA

I'd also consider genetic testing for you and your husband to see if there is anything genetically awry that may be making for poor quality sperm or eggs. https://www.verywellfamily.com/parental-karyotype-tests-2371787 This is quite expensive for most people (it's only rarely covered) and so I'd suggest having the other testing done, which at least some of should be covered by health insurance before going to a geneticist.

Blessedbymybabies
December 19th, 2018, 11:12 AM
Atomic. It means alot coming from you and I do see what you are saying about the losses may very well be unrelated. I really might have just had the worst brush of bad luck with these pregnancies and Im trying to just accept that. I never did understand why the Umbillical cord accident happened last pregnancy, and my sons passing was due to his heart. I just feel those heart defects on their own scares me to think we can make babies that are very sick and it saddens me. In the way of genetic testing, we actually ran all the tests we could with a genetic counsellor to find out if he inherited the defects from my husband and I or if it was random. I dont remember names of the tests but I know hubby and I did blood work on ourselves as well and it took several weeks and everything came back and she concluded it was an isolated incident and not genetic, unlikely to ever happen again. He as well had no Chromosonal abnormalities, just the heart malformations.

I dont know if the genetic testing would be different if it is general testing or if it would be the same type of testing they would have done at the time of my sons heart problems, I will ask. It would probably be different if your saying it can tell us anything awry causing poor sperm or eggs. I would like to know.
As far as any other testing, I have done nothing but regular blood work for pregnancy as my doctor thinks I am young and healthy. This pregnancy she didnt even want to check my progesterone adding "We cant do anything about that anyways, so we dont generally test for it". I dont even know If I should just give trying again a go and hope its okay, I SO dont want to wait weeks and months for testing. Im at a loss as to what to do but maybe my OB will give me some insight too

atomic sagebrush
December 20th, 2018, 05:56 PM
Oh yes that's right, I remember now that you told me.

I suspect the genetic tests would be the same but if you were wondering about it, you can call and ask. I suspect they'd be happy to help answer your question and then we'd know for sure.

I answered more in your other thread but personally I would try. I had forgotten about the cord accident, that is also just so very rare and I've had many people experience that and then go on to have a healthy pregnancy. I'm so sorry, wish I could do more. :heart:

goldielock615
December 27th, 2018, 11:05 AM
Hi Blessed,

My RE also think progesterone is a product of an unviable pregnancy, and so testing and supplementing just prolongs the miscarriage. However, she was receptive to the fact that I cared about it and always added it to my bloodwork. It's a simple blood test with the hCg, it seems like a bad sign your doctor isn't listening to your concerns. I switched from an OB who brushed me off a lot to a new OB after my losses. If your OB isn't handling your concerns in a way that fits for you, maybe you could consider switching. My new OB also advocated for me repeatedly in a subsequent pregnancy when the hospital kept saying I had cramping or indigestion, when it turned out to be a hernia.

I don't think you have to choose between continuing to try and getting testing done. It can't hurt to schedule the appointment with the RE while you continue to try, incase you haven't conceived you could continue testing. A good doctor will also let you talk about which noninvasive tests you'd like to start with if you do not want to do some of the others right now. I personally decided to wait for testing and had one period after my loss, then a second period while I finished up testing. I could have tried the second month but decided to wait for my HSG.

Good luck, I know how hard losses are around holidays. I hope you are taking care of yourself.