Anyone else here TTC with autoimmune disease?

I'm now being told I'm fighting a losing battle as I'm am not only confirmed Hashimoto's Thyroiditis (you'd think the partial thyroidectomy would have sent up a HUGE red flag to all the doctors...), but now I'm being screened for Celiac as you don't typically have 1 without the other.

I've been eating whole foods and taking appropriate supplements since March, but now I have to cut all gluten out of my diet to boot and that a single iota of gluten can stay in your system for up to 8 months and wreak havoc on your fertility systems. My ENT has chalked my recurrent m/c's up to the autoimmune and he actually had the audacity to "pouty face" me and tell me to wait for grandchildren!!! This is the same guy who 14 years ago told me after removing part of my thyroid that I would never have kids again yet didn't even bother to tell me how to treat myself after the surgery!!! Just having my 2 DD's has been labeled a "miracle" and I'm now told to be happy with them and be done.

Yes, I'm furious over this. Had I been on a treatment plan, I might not have lost so many years to unsuccessful trying and maybe I would have a better chance due to taking proper care of myself and what I ate so that my boys would be here with me now.

Sorry for ranting, but the more I think about it, the more upset I get.

Just hoping that everything I'm doing will not be for nothing when we cycle again, which is now looking like late December again.

Yes, me. I have several immune issues that are mentioned in my signature. It sounds like you have dealt with some interesting doctors so I am going to recommend the BEST doctor that deals with this kind of stuff. His name is Dr. Jeffrey Braverman in Long Island. His website is www.preventmiscarriage.com. I seriously wouldn't mess around with any other doctors until you speak with Dr. B. I know several people, including myself, that have worked with him to find a treatment for our immune issues and he is highly regarded in the infertility community. There are so few doctors that understand all these immune issues but he is one that does. Yahoo has a group of immunology patients and they all go to Braverman (or 2 other docs) but I know you have mention you are in NY. I seriously can't say enough good things about him and you won't need to look for another doctor I promise you that much.


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I also wanted to mention that Celiac's isn't something they test for when it comes to figuring out autoimmune or alloimmune disorders with IVF. You can definitely have that test done to see if it is something you suffer from but just know that the results may not be the full picture and you will probably need more testing such as cytokine levels and cytokine ratios (just as an example there are a ton more tests besides cytokines). There are few tests included under the umbrella of what they test for for Celiac's so that is good you are getting that done as testing like that is always good if you are concerned about it. I hope you get the answers you need soon and definitely PM me if you have any questions!

I can't believe your doctor told you that you couldn't have more babies after having a partial thyroidectomy! I had half my thyroid removed, and no one told me it would affect my fertility (and it didn't).

I am sorry that you are dealing with these issues, and I hope your next cycle is successful!

Michaela,
I'm in MA, but only 4 hours from NY, so don't mind the travel. I'll PM you, I'm interested in learning more about what you've gone through. They're checking me for Celiac's to rule that out, though he's pretty sure I've got it. I've been autoimmune for years, at least since '98 when they found the hashimoto's.
It took me 2 years since my surgery then 6 years after her birth for the next one, and that's with constant trying. They have no other explanation other than the autoimmune. Now I know my right tube is junk, but IVF it won't matter. They only tell me I'm miscarrying now due to my age. I can't believe that. They aren't running testing I feel. I want a full work up, something other than age is a factor here, so we're chipping away at it.
We'll get there!!!

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Originally Posted by Hobbermittens

I can't believe your doctor told you that you couldn't have more babies after having a partial thyroidectomy! I had half my thyroid removed, and no one told me it would affect my fertility (and it didn't).

I am sorry that you are dealing with these issues, and I hope your next cycle is successful!

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Thank you! Yep, in '98 was told it wouldn't happen, but we got our daughters. So I am capable. I also know that my eggs fertilize fine, implant fine, but the darn abnormalities are the issue. For all I know it's the IVF drugs. We have kinda half been trying but no luck.

I've been thinking of you! I'm glad you are getting ready to get on the path to being as healthy as possible and preparing your body for a healthy pregnancy. Hang in there.

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Originally Posted by fresas

I've been thinking of you! I'm glad you are getting ready to get on the path to being as healthy as possible and preparing your body for a healthy pregnancy. Hang in there.

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Thank you, Fresas!
AF showed her face again yesterday and I'm again once happy to see her, lol, though each month she's consistently 27 days, not 28 (hubby thinks I'm syncing up with DD in the house)
He's also getting anxious to try again (too many healthy changes being thrown his way and the gluten free brownies and no milk conversation set him off today). He just wants to hurry up and have the baby(ies). I'm heaving involved with doctors now for my autoimmune. I get my thyroid scanned Friday. My blood draw was interesting, my blood has actually changed color!!!

Hi! I just wanted to let you know that I was diagnosed with Hashimotos last year and was unsuccessful on a couple of IVF/PGD cycles after the diagnosis. We moved to the IUI route due to a blocked tube and we are now 12 weeks pregnant with twins. GL.

Hey, I don't have much expierience with immune issues, but wanted to say that I don't know if you should go gluten free until you have your endoscopy, otherwise you may get inconsistent results. You need to have been eating gluten so they can see the damage it is making. Sounds like it is time for a new dr! The blood test for celiac is good but final diagnosis will be by endoscopy.

I am really glad though that you have some answers xo