Didn't expect that...

Hi girls,

I promised an update after my last blog. Well... turns out, it's not good...

I'm still in shock, so please forgive me if this seems a bit clinical...

My doctor was at first perplexed why I was called in there until he got all my results up on the screen.. then he got quiet.. He started flicking through books, calling colleagues and kept apologising for the wait.

I suppose, I can start with the good news first!? My last bloodtests showed all my hormone levels were abnormal. Since starting the LE diet all my hormones have stabilized and are now normal - except for two. Testerone, which has fallen more than half and is now only slightly elavated and prolactin, which is the problem. But, atleast this is one bit of evidence to show that the LE diet does work... Atleast, that's something.

The prolactin bit isn't good. As I'm neither pregnant nor breastfeeding... well, to put it bluntly, my doctor is fairly certain I have a brain tumour... I'm devastated beyond words.. I've gone through the day switching between laughing and crying. I'll need and MRI to confirm diagnosis, but my doc said there were precious little it could be otherwise as it was clearly not there before I had DS2 (therefor not a syndrome of some description).

I went into this year thinking I'd go out of it holding my babygirl... Now I got to get my head around possible having cancer. How do you do that!? more importantly, how do you tell your loved ones? The worst is my boys... makes me cry just to think of them.

I thought my next trip to radiology would be to see my next baby, now it will be to find out if I really do have cancer and according to my doctor it's the most likely scenario...

What to you say to that!? .... Dammit....

What is your prolactin level?

It's well over 700. In non-pregnant women it shouldn't be more than 29 mg/L.

It is likely non cancerous and 25% of people have them on their pituitary glands. It is treatable if that is what it is.

Vomit. My stomach actually turned reading this.
As mentioned above a tumour can be benign and many people live with them, my boss is one of them (pituitary tumour).
It's all very terrifying, but stay strong until you know what you are dealing with. Don't loose the dream of holding your baby girl, this is an obstacle, not a dead end, and your boys don't need to know anything yet, if ever.
Thinking of you xxxx

Pixi - that's exactly what they think I have. and Hopefully it's benign!!

Didn't want to read and run. I'm so sorry Hun. Is there any chance that it could be a lab error? I've had some errors before.

I hope it's the best news possible from the scan xxx

My sister was diagnosed with a pituitary tumor...almost 12 years ago! She is totally fine with no symptoms...and 3 kids to boot. It must be awfully scary, HUGS.

It's not a lab error and unfortunately I do have symptoms as it is, i.e. very frequent headaches, blurred/double vision.

I'm so sorry... I don't really have any other words. Sending you and your family hugs x x x