September 2013 babies!!

[WantingPink]

Northern I am so sorry you are going through this. I really hope your amnio results come back normal. If they don't I know you will choose what is best for your family and I don't think you should feel bad for that. I don't think I could go though that or have my kids go through that so I completely understand with whatever decision you make. I will be thinking of you and please keep us updated!!

[Girlsway]

So sorry Northern, that's so upsetting. Let's hope there is a chance everything will be okay.

[Northern_Shutterbug]

Thank you, but from research, even if it was just the swollen brain then she would be severely brain damaged.

[Charlee]

Northern - Sorry to board crash but I couldn't read and run. I am SO sorry you are facing this devastating news. Having gone through so many losses myself I know exactly how you feel. I want you to know that whatever decision you make will be the right one for you and your family. A loss like this will undoubtely change your lives forever, but I want you to know that it WILL get easier with time. The pain will never fully go away, but you will learn to cope with the loss. When I lost our first son (at 32 weeks) I thought my heart would never heal... but it did, slowly. I just want to give you a glimmer of hope that your life will return.

Even though we have never really spoken, I will be keeping you and your family in my thoughts today. from California.

P.S. I highly encourage to seek all the specialists advice you can before making your decision. Also, I'm sure there are support groups affiliated with your local hospital. They will be a valuable resource to you during this time. If you need any info, please don't hesitate to msg me.

[shiningstar]

Northern, I'm so, so sorry. I'm praying with all my heart that the results come back normal. I'm hoping they are wrong about her brain too. With my first son we were told a part of his brain was too small. A follow-up ultrasound revealed it was the right size. Just know that we are here for you no matter what & I'm sending a lot of prayers your way.

[fish2012]

I didn't think I'd be writing this, but I knew things were too good to be true, we'd sold our old house, hubby was sailing through an interview process for a perfect job, and we were finally getting our little girl - I just knew something would topple, everything was too right. Heck, I even jinxed myself! Every pregnancy I've been careful not to get too carried away, and not to buy things too early, what could I expect! I bought bundles of clothes, we'd chosen a name, I imagined my life with a daughter...more fool me.

Today we saw our little girl, the little one that has been kicking me non-stop for the last two weeks. She was hiding her face and had her hands over her head. We saw her stretching her legs and the bright white spine. The sonographer took the measurements and kept complaining she was in an awkward position. Then I asked the fatal question "is she ok?".

There were concerns we were told. Her head was swollen, and the sonographer couldn't look at her heart properly because of the awkward position. We were told to go get a drink and hopefully baby would move.

Although, when we returned, we weren't sent back to the scan room, we were ushered into an office. The head midwife sat us down, we weren't getting another ultrasound.

Our little girl, Evelyn Rose, has an enlarged head, fluid round her tummy, and something is showing on her bladder and kidneys. The four chambers of the heart couldn't be seen clearly either. They think it might be Edwards Syndrome or something similar. There was no glimmer of hope that the midwife gave, no sign that this could just be 'one of those things' that might resolve itself. She handed me tissues and said she was sorry.

I am booked in for a scan by the consultant on Tuesday, and they'll also do an amnio, but I knew things were too good to be true, I knew for years deep down that I couldn't have girls, now once again in my life someone is taking great enjoyment in snatching that dream away from me.

We always said that we couldn't cope with a disabled child, we personally don't have the strength, and I don't have the mental strength to deal with it.

Most babies with Edwards Syndrome aren't born living, if they are, then life expectancy is 5-15 days.

I can't face that, I really can't. If the results come back with anything but normal that I can't continue this pregnancy. Yes, I'm weak and I'm sorry if it upsets anyone, but it would break my heart beyond repair.

Omg northern Edwards is one of the things our lill one may have. Don't make a decision about what you may do until you know the facts. One reason I'm cautious about sharing our lill girls possible condition is one of the things we may have to consider is termination and I know like you I could nt cope and wouldn't want to burden our boys after we re gone I am so sorry You're in this position too

I know we must be along way apart but pm me if you wanna try and meet up I will pray for you if that's okay.

Darling so so so sorry xx

[fish2012]

Ps northern I was told life expectancy up to a year if she made it to birth, can you get a second opinion? We were referred from our local hospital to London is there an option like that?

Fx for the amino how quickly do they get results?

Totally emphasise re kicking its hard to believe anything is wrong isn't it xxc

[atomic sagebrush]

Oh God I'm so so sorry to read this. I don't even have the words to say but I do want to reassure you that this does not mean you cannot carry girls. These are horrible fluke things that happen just randomly. I am praying with all my heart and soul for good news.

[DLTAG89]

Northern all i can say is i'm so so sorry to hear your news. I really hope your results come back normal. Thinking of you and your family. Big hugs x

[divakotka]

I hadn't been on here in a few days and just saw your post Northern. I am so so sorry for the terrible scare! But I a praying that it was just that, a scare, and that the next few tests will reveal that your little one is okay. Ultrasounds can be quite off in their measurements, especially if the baby isn't in a good position. Keep your head up!

Fish -- my friend's baby boy had cysts on his brain throughout the pregnancy and they went away towards the end. He is totally fine! My friend was told that this is actually quite common and usually not a concern, if there are no other markers.