don't know where to begin but help please?

[SweetLily]

Sorry I went mia ladies. Had to take a break after last months mc.

Went to RE and got my 3 year old results and am reeling. It seems 3 years ago I tested abnormal and "borderline positive" for antiphispholipin syndrome. Its the anticardiolipin test.

Atomic, you're correct. That IS an autoimmune disorder. Its also a blood clotting disorder (yipee, two for one!)

I am so upset they never told me. I even called and asked and they said all tests were normal tho this was listed abnormal.

I would not have known at all if I hadn't asked for the print outs in case I go to Dr B. They handed them to me as I was leaving. The Dr was gone so I couldn't ask her.

I have a shg in 10,days and will ask then. She redid all the tests and told me to start baby asprin every day. She also prescribed me femera.

I read up and am scared. It seems if this second test is pos I will need to be on heparin for the rest of my life. AND i n pregnancy they give you lovenox that costs 1000 per month and I can NOT afford that. Do I give up my dream now?

Im so upset. Feel like I've been kicked in the gut. If I have to take the RX for 1000 a month and then the prometrium which is 260 and then prednisone cause its autoimmune....

Does anyone have any hope for me here?

Sheesh. You'd think I'm on deaths door, not a fit athlete...

Wow. No words.

[Pink rose 76]

Gosh I'm so sorry sweet lily! That is not Gud the clinic didn't go through your results properly. But Gud now you know the full picture.

Taking aspirin is an easy option for your clotting so at least that side is covered but regarding the femara and maybe heparin, lovenox you may have to see what happens at your consult. I'm sorry i don't know much about immune issues but glad you're on the way to solving the solutions with your doctor.

Please don't worry yet about things just see what the doctor says. I hope things work out for you. I really do x

[maidentomother]

I'm SO sorry hun. How outrageous that they never bothered to tell you. Maybe aspirin will be enough and you won't need Lovenox? Maybe Femara will do enough to boost P that you won't need it? I would give aspirin/femara/prednisone a shot.

[XXforhubby]

I'm so sorry Sweet Lily! There is no excuse for them not telling you, even if you tested borderline, you have a right to know! I agree with Maiden! Plus, I think it is good you are going to see another RE. I would not be able to trust the one you had been seeing- I question their judgement.

FX and [emoji120]for you honey!


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[atomic sagebrush]

OH huge hugs!!! That can be secondary to some other autoimmune disorders, I would push to be tested for Lupus if they aren't already.

But that having been said, deep breath and let's be thankful that we did find out about it. In rare cases this could actually be life threatening and it is so good that we at least know where to start now. (altho frankly I'd be talking to a lawyer, because it's absolutely unacceptible, with repeat miscarriages that this was not mentioned to you. It would be one thing if a borderline finding was not mentioned if there was nothing else going on - but this really seems malpractice-y to me.)

Will none of that be covered by insurance?? AT the least they should cover the heparin.

You may not need the prometrium if this is what is happening. Get this corrected and your body may be able to handle it all on its own.

Can you please give me a rundown of everything you're taking right now because there may be some things that are unsafe for you we'll need to have you wean off of now. Some people may not be able to take anything containing Vit. K for instance and that is in many women's vitamins.

[atomic sagebrush]

And of course this goes without saying but if you have any symptoms of blood clots, get thee to an ER immediately and mention that you're under investigation for this.

[SweetLily]

Wow, I just lost my entire post. Grrr!

Thanks for all the well wishes ladies.

I cant sue, this is canada and no one wins. I found out I can apply for pharmacare and get most of the drugs covered.

I have taken aspirin for the last 6 mcs. It obviously did not work, so we need something stronger!

Once again Atomic and Maiden, I will write out everything I am taking, my plans and the tests the dr just did.

Tests: lupus anticoagulant, free t3/t4, ena profile, homocystine, thrombosis screen, b2 glycoprotein, anticardiolipin (the one that was borderline +) aslo anti nucolear antibodies, magnesium, tsh. She is sending me monday for my LH, Estro, FSH, TSH etc on my day 3. Doing a sonohystogram on the 13th on cd 10.

Our plan: TTC in 6 weeks when i o, I am cd 1 today. taking femera days 2-6, 2 pills once a day total 5 mg (next cycle). The do opk. at + ok dtd ONCE, using my diva cup? then 48 hours after + opk I start 600 mg of prometrium a day. OUCH. 200 mg 3x a day. on 12 dpo I do a beta hcg. So I am also charting.

My diet etc. I jog every morning. When I get back, around 11 I eat 1/2 a shakeology shake in water for brkfst. I eat a brown rice/quinoa blend with arugula or spinach for lunch, then another 1/2 shakeology shake for supper. My total protein is about 35 g a day. Sometimes I also eat an apple. I am doing a liver detox as one last push before ttc for the next 30 days.

supplements DAILY
I am supposed to be on ASA but am taking 1 cranberry a day for the detox duration. Then I will start the asa.
Vit c, 1000 mg
vit d 1000 iu
vit e 400 iu
maca 1500 mg
royal jelly 1000 mg
omega 900 mg
msm 3000 mg
selenuim 200 mcg
zinc 25 mg
advanced b complex 600 mg (deficiency)
magnesium 8x 800mg (major deficiency)
folic acid 3 mg on top of the 1 mg in b complex
chlorella 3000 mg
coq 10 100 mg
n acetyl l cysteine 100 mg

Yes, I dont need to eat after that. I take throughout the day, but its a lot of pills.

I also take essential oils: ginger, orange, tangerine, lemon, oregano, clove, nutmeg, cedarwood, lavender, pepermint, and I run melaleuca on my tummy. These are young living theraputic grade ingestable oils. I also take their nijixa juice which is super high in antioxidants. I am trying to get super healthy so I can have a baby at all, but i WANT A GIRL and DH does too!

So given the new news, I am guessing my eggs have NOTHING TO DO WITH IT and I dont need all this boy crap.

What can I safely keep taking for a girl sway? I am kinda liking the royal jelly. Thoughts on that? I have printed read and reread almost everything on this site and bought a plan but I am more confused than ever. LOL.

Please tell me what to do.

I put dh on OLE and Vit c. Is it ok for me to take OLE too? I was but gave it all to him. What else can I out him on? Is NAC good? I just dont know anymore.

Please help me dear ladies. Thank you so much all of you, and especially Atomic and Maiden for always being there to tell me what to do. I LOVE you girls!

[SweetLily]

Oh, and I am going to do 2 cycles her way with the femera and whatever else she does, and if I dont get my sticky bean I am going to sell a kidney and go to Dr B!!!!

[maidentomother]

Gosh I wish I knew more about immune stuff and could advise.

Re the swaying stuff, I would focus on diet, exercise if possible (60+ min cardio daily - how long are you jogging for currently?), and one attempt at positive OPK. No diva cup, could sway blue and conception isn't a problem for you.

Dietwise I think you should do a gluten free version of the PCOS LE diet, but NOT the Atomic Fertility Diet. You ger pregnant so easily that I don't think there is any issue with egg quality and considering your multiple sons I don't want to go in too blue a direction.

I think you need to get off the Shakeology stuff since it's so fortified, and drop ALL of the supps you listed except the Mg/B vitsmins you're deficient in, the folic acid and CoQ10. Everything else either sways blue or isn't safe/wise to take (Maca and RJ are basically scams and you definitely need to drop them ASAP).

I would maybe consider waiting 6-8 weeks (if not longer!) before TTC so you give your body some time to clear all those blue friendly nutrients. Then femara, progesterone, prednisone when you do TTC, those are all fine or even sway pink. Mostly the latter.

How long have you been taking high dose supps and doing Shakeology?

[atomic sagebrush]

This is a bit long and I have been working for 6 hours, please give me a bump.