HT & Autoimmune disorders

[willtherebe4]

This is the reply I got from Dr Braverman......

...We have had success with AS . But of course you need to be sure it is the AS that is the problem (but I do think that is most likely). I would need to get testing on you to see where we would need to focus the treatments. I would want to look at cellular and antibody profiles on you as well as a complete cytokine profile (serum and cellular). But I'm sure I can at least give you answers. At that point I would be able to recommend supplements as well.
If you would like my help please fill out the consult form on our website....

And here is the link, but you might have to join as a member to read the forum..
Miscarriage Questions: Ankylosing Spondylitis (HLA-B27 +ve) and IVF/PGD

[Dana-Alicia]

Well at first I was convinced of HRC. I think they are the best. But the travel there makes it so expensive. I'm considering Farah in Amman right now. They are half the price, including travels. I'm just not sure, though decision! You? And when will you be cycling? I'm hoping to cycle in june 2015 or december 2016.

[Dana-Alicia]

Oh just see dr. braverman responded. Are you going for those tests? I wonder why our own doctors don't do those type of testing on us? My rheumatologist only had the bloodtest done to confirm the HLA-B27 and I had an MRI where they saw the inflammations and dammage to my pelvis and spine.

Do you think your miscarriages are caused by AS? I sure hope not My rheumatologist never mentioned any of those things. My gyno said it was just bad luck when my daughter was still born.

[willtherebe4]

Oh just see dr. braverman responded. Are you going for those tests? I wonder why our own doctors don't do those type of testing on us? My rheumatologist only had the bloodtest done to confirm the HLA-B27 and I had an MRI where they saw the inflammations and dammage to my pelvis and spine.

Do you think your miscarriages are caused by AS? I sure hope not My rheumatologist never mentioned any of those things. My gyno said it was just bad luck when my daughter was still born.

I'm so sorry for the loss of your little girl, I cant even begin to imagine how devastating that must be.
I am now thinking that my MC could be related 3 out of 6 pregnancies isn't uncommon but its not exactly common either in a relatively young and healthy person. I don't believe that your little girl or that a stillborn would result from AS as I think it would impact far earlier on. Were you offered any testing to find out what the cause might have been?
I hope to cycle at HRC, I think they are the experts and the more I learn about things like this I want to deal with someone that understands and can deal with it too. To be honest I haven't had to see my Rheumatologist all that much but I too was confirmed via MRI (mine in my sacroiliac joints hence the pain in my hips) and also HLA-B27 positive but he did say a mild case (I just hope it stays that way!). I will be asking more specific questions at my upcoming visit

[michaela]

So glad Dr. B could/can help, I figured he would be able to! He is very very good with immune stuff and looks at the big picture. Just so you know, in order to be treated by him you have to cycle with him in NYC. He recently changed his policy.


Sent from my iPhone using Tapatalk

[willtherebe4]

So glad Dr. B could/can help, I figured he would be able to! He is very very good with immune stuff and looks at the big picture. Just so you know, in order to be treated by him you have to cycle with him in NYC. He recently changed his policy.


Sent from my iPhone using Tapatalk

I dont think I will cycle with him, I thought he did skype consults though. I thought if I at least know more going in to it, it would be better. I am yet to have my consult with HRC as awaiting apt with IVF specialist in Aus for US's.

[michaela]

I dont think I will cycle with him, I thought he did skype consults though. I thought if I at least know more going in to it, it would be better. I am yet to have my consult with HRC as awaiting apt with IVF specialist in Aus for US's.

He does a free 10 minute consult to determine if you should do the full consult. The full consult is $650, I believe, because he is a specialized clinic. Well he does normal cases as well but mainly specializes in that area. And if course after I typed this I realize that you are in Australia and I can't remember how he much he charges for those consults or if you have to cycle with him in order to get treatment. My guess is if you were working with a clinic there then he can treat you but he can't if you are working with another clinic in the US. I don't know that for sure though. Worth checking into though!


Sent from my iPhone using Tapatalk

[Dana-Alicia]

Oh that's too bad you'd have to cycle with him. Of course I understand, but it would be nice to get an expert looking into this. But maybe there are more experts, poss even is Aus to get a good look at your case?

[michaela]

Oh that's too bad you'd have to cycle with him. Of course I understand, but it would be nice to get an expert looking into this. But maybe there are more experts, poss even is Aus to get a good look at your case?

There are other reproductive immunologists in the US (not sure about internationally). If anyone is interested, PM me and I will give you a list. Some will treat patients without having to actually be seen by them and others will want you to be seen or like Braverman, will want you to cycle with them.

[HopeandDreamG]

Michaela- ever hear of dr.kofinas? He's big on thrombophilias and caught it in me when no one else even tested for it! He goes on and on about docs not even testing for this stuff and can't believe the amount of miscarriages he feels could be totally avoided.